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Studies of the Natural History of Sickle Cell Disease

Sickle Cell Has Many Faces!

Close-up face shots of different people

A family smiling

Explore the dynamic link between sickle cell disease and specific gene variations as medical experts analyze fluids and cells from individuals impacted by this condition. Join us in this research journey, aiming to deepen our understanding of the disease and pave the way for enhanced diagnostic and treatment methods. Together, we contribute to the development of improved approaches that can make a significant impact on managing sickle cell disease. Join us in making a difference.

Why participate?

As part of this research, you have the opportunity to undergo genetic testing at no cost, and you will also be compensated for your participation. If you choose to take part, you will need to undergo a heart echo and clinical labs, and the results of these tests may be shared with your healthcare provider. You will be required to visit the NIH Clinical Center for a one-day evaluation, but travel assistance may be provided.

Who can participate?

Individuals 18 and older with or suspected diagnosis of sickle cell disease are eligible to participate in the study.

The NIH Clinical Center, America's Research Hospital, is located in Bethesda, MD, on the Metro Red Line (Medical Center stop).

For more information:
NIH Clinical Center Office of Patient Recruitment
800-411-1222
TTY users dial 7-1-1
Email: ccopr@nih.gov

Or go online
Refer to NIH study # 04-H-0161

Department of Health and Human Services
National Institutes of Health Clinical Center (CC)
National Heart, Lung and Blood Institute (NHLBI)