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Collection and Storage of Umbilical Cord Hematopoietic Stem Cells for Sickle Cell Disease Therapy

Umbilical Cord Blood Donation and Help Find a Cure for Sickle Cell Disease

mother holding her baby

mother and child

The blood from the umbilical cord and placenta are essential for investigating large number of blood-forming cells. The cells may be life-saving for someone who has sickle cell disease. A study at the National Heart, Lung, and Blood Institute (NHLBI) is looking for the best ways to collect, process and store umbilical cord blood from pregnant women.

Who Can Participate?

  • Pregnant women between 18 to 45 years of age
  • Women at risk of having an infant with sickle cell disease or women who are pregnant with no risk of having an infant with sickle cell

Study Details:

  • Provide informed consent
  • Undergo screening using the Hematopoietic Progenitor Cell, Cord Blood Donor History

Questionnaire:

  • Receive the Duke Carolinas Cord Blood Bank (CCBB) collection kit, and provide the kit to your obstetrician prior to delivery
  • Allow your cord blood to be collected from the umbilical cord and placenta after your baby is born, and have it processed, tested and stored at CCBB/STCL in Durham, NC

The NIH Clinical Center, America's Research Hospital is located in Bethesda, MD on the Metro red line (Medical Center stop).

For more information:
NIH Clinical Center Office of Patient Recruitment
800-411-1222
TTY users dial 7-1-1
Email: ccopr@nih.gov

Or go online:
https://go.usa.gov/xSQqW
Refer to NIH study # 01-H-0122

Department of Health and Human Services
National Institutes of Health Clinical Center (CC)
National Heart, Lung and Blood Institute (NHLBI)